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The Overlooked Needs of People with Intellectual and Developmental Disabilities and Actions to Strengthen Health Systems for Inclusion

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What is Rosemary Collaboratory?

Rosemary Collaboratory builds upon lessons learned and relationships forged by Special Olympics through nearly 30 years of community-level health programming. This report provides recommendations for policy change and urges governments to take urgent action to make health for all a reality. 

In 2024, Special Olympics launched the Rosemary Collaboratory in 11 locations around the world. For over 20 years, Special Olympics has implemented health programs in these communities, building strong local relationships and a deep understanding of what governments and health systems need to achieve health equity for people with IDD.

Athlete David Duncan
Many of us aren’t living our best lives because we aren’t as healthy as we could be. This is because we are overlooked, invisible, excluded, and so are our needs.
David Duncan, Special Olympics Athlete; Chair, Global Athlete Leadership Council, Special Olympics
Key Recommendations
Our hope is the findings of the Rosemary Collaboratory, documented in this report, will spur progress. We have outlined four specific recommendations that can be used to drive change.

Governance, Leadership, and Engagement

Sustainable change demands strong, resourced implementation of global commitments that includes people with IDD in health policy, raises public awareness, and empowers people with IDD to advocate for their health needs.

Person-Centered Care

Meeting the health needs of people with IDD requires a person-centered approach, including supported decision-making, patient navigators, and accessible communication to improve health literacy and support their journey through the system.

Health and Care Workforce

People with IDD face stigma and unique communication barriers when accessing the health system and interacting with healthcare professionals. Comprehensive, evidence-based training can help bridge the gap between patients and providers.

Data for Monitoring and Research

Effective data collection and analysis are essential to addressing health disparities faced by people with IDD, as they help identify gaps in care and drive policy change.
Take Action for Health Equity

People with IDD live 16-20 years less than the general population. They face disproportionate preventable health challenges due to gaps in the health system, including a lack of knowledge, policies, and engagement. This leaves them overlooked, not because their needs don't exist, but because they remain invisible.

This is where you come in.

By sharing the findings of the Rosemary Collaboratory report, you will join SOI in pushing for real, impactful change.  SOI welcomes you to engage with the report and resources below to join the movement to ensure that people with IDD receive the care, attention, and respect they deserve.

Read the Report - English (PDF)